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Channel: Rheumatoid Arthritis » Rheumatoid Patient Foundation
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Be Heard via the RPF’s Rheumatoid Arthritis Patient Survey

Rheumatoid Patient Foundation brings you its 1st Rheumatoid Arthritis Patient Survey The Rheumatoid Patient Foundation (RPF) exists to serve people with RA. Although there have been numerous...

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More Rheum Adventures on the Road

Happy Saturday, y’all! Yesterday, I drove back from my mom’s ranch up on the Florida Panhandle. It was my first road trip since RA with me as the sole driver. My survival tools were cruise control,...

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Response to An Identity Crisis for RA by Dr. R. Franklin Adams

Recently, I read an article in The Rheumatologist (preceding a new PR campaign by the American College of Rheumatology), “An Identity Crisis for RA: A few suggestions to bring rheumatic disease the...

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Rheumatoid Patient Foundation Needs Your Help

I was glad when it started raining today – it’s proper to rain when you cry.   The Digital Patients’ Bill of Rights Things are happening fast. The E-Patient Connections conference was fantastic. The...

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Happy Birthday #Rheum for World Arthritis Day

Last October 12, I was in New Jersey in on a WEGO Health panel of health activists. But before I got on the plane, I wrote a blog post to share my concept of a #Rheum community online for people...

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Video: Rheumatoid Patient Foundation Gives RA Patients a Voice

This week, the Rheumatoid Patient Foundation (RPF) conducts our first exhibit at the American College of Rheumatology (ACR) Annual Scientific Meeting. Beginning tomorrow, we’ll present our video The...

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Update from Chicago!

It’s our last day in Chicago!  Katie Beth and I are going to be tourists for a half-day and then pack for an early flight. All day tomorrow we’ll be in transit. Here’s a quick update until I’m able to...

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Kelly Young Wins WebMD Health Hero Award

WebMD magazine chooses Kelly as 1 of 4 “Champions of Care”! Look what I found on my dresser when we got home from Chicago last night! The new WebMD magazine with yours truly in it! You can click on the...

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Digging in to the 2011 American College of Rheumatology Scientific Meeting

As I returned from the 2010 American College of Rheumatology Scientific Meeting last year, I painted a picture for you of its significance and the impact it made on me. Those words are still a proper...

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Hoping Really Hard: 2 Battles I Fight to Win

Two things I’ve been hoping for with all my heart, so I’m doing all I can If you’ve been reading my blog long, you know I talk about hope as a verb – something you do. Hope is not something that some...

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We Refuse to Be Mislabeled: Updating Rheumatoid Arthritis (RA) to Rheumatoid...

Three years ago, I saw Rheumatoid Arthritis (RA) patients insisting that the name of the disease needed to be changed. They argued that until the “a” word is removed from the name, confusion about the...

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Rheumatoid Arthritis Awareness Is about Medical Care, Not Sympathy

My Bear had an appointment to see his terrific pediatrician today again about his swollen finger joints. She was home with a cold, but we waited an hour to see an alternate. The fellow didn’t seem to...

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Mayo Clinic Contest! 5 Ways Patients Can Make a Difference!

1) Rheumatology patients are teaching medical students in the Britain! The biggest difference patients can make is to help the medical profession understand their conditions better. Patient instructors...

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Sample Size: 1 of Every 100 RA Patients in U.S. Are Members of Our Facebook Page

Transparent objectives of a patient community As the author of this blog, I’m completely transparent about why I’m here: Stunned at learning what so many RA patients endure, I committed to doing...

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What If Rheumatoid Disease Were Recognized, Properly Funded & Medically...

Just think. What if you told people you have RA and they actually knew what that meant instead of dismissing it? What difference would it make if Rheumatoid Disease had comparable NIH research funding...

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We’re Warriors So Fighting On Is Just What We Do

Blue Button meeting at HHS (ONC)The iPad looking back from the front of the crowded meeting room. #HealthIT4u at ONC@Farzad & @Lygeia (in Walking Gallery jacket) at Blue Button meeting. Kelly and...

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Win a Pentax Camera! While You Spread RA / RD Awareness!

The PRIZES! FIRST Prize: Pentax Optio RS1500 Digital Camera 2 SECOND prizes: one of 2 $25 iTunes Gift Cards The CONTEST! What’s the contest about? For years, people who live with Rheumatoid Disease...

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Helping the Healthcare World Understand Rheumatoid Disease

The “don’t-miss-the-plane” rush is on. My suitcase is half packed. I have a fever and I’m not washing my hair today because my wrist can’t muster it. Yet, I’m going to get on that plane to D.C.! Why...

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Happy Thanksgiving! Not Margaritaville, But Still Sunny

I’m thankful for you! I’m always grateful for this community and the difference you’ve made in the lives of so many people searching for support or who just need to know they’re not alone. Many of us...

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